“No MU without ME”: join the campaign to fight health data hiding
Click to download this social media badge. See blog post for instructions. Several edits made, 1-2pm There is a movement underway – a movement for patient liberation and autonomy – and the empire is...
View ArticleAnnouncement: SPM to advise ACP’s new Center for Patient Partnership in...
SPM co-founder and co-chair Dr. Danny Sands is appointed our first representative On Friday the following notice was distributed to members of our Society for Participatory Medicine. What a wonderful...
View ArticleBREAKING: Susannah Fox is HHS’s new Chief Technology Officer
A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox is the new Chief Technology Officer at U.S. Department of Health and Human Services. How amazing is that??” My comment on...
View ArticleNew Participatory Medicine Resources for Providers
Ever since the formation of the Society for Participatory Medicine we have discussed curating and sharing resources about participatory medicine. The resources might be videos, websites, blog posts,...
View ArticleA Turing test for diagnosis: BMJ evaluates online symptom checkers; good...
A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are...
View ArticleNational Doctors’ Day, clinicians, hacking open access, and remembering an...
Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in!...
View ArticleEric Dishman’s transformational speech on his last day at Intel: “Knowledge...
I’ve known Eric Dishman for about five years, because we’re both kidney cancer patients. I’ve known that he’s a really sharp thinker, and a high-ranking executive at Intel, deeply interested in and...
View Article“Google to offer better symptom search”: Relief at last, or “Here we go again”?
Click to read story on USA Today site. (This image is a composite of the page 1 banner (nameplate) and the inside-page Google story.) Regular followers of this blog know for years we’ve been hot on the...
View Article“Words that annoy, phrases that grate”: BMJ Patient Panel post & tweetchat
We’ve written often here about the BMJ’s leadership on not just listening to patients but looking at healthcare from the patient’s perspective. Their patient partnership campaign, launched in 2014,...
View ArticleHow the Latest on Facebook, Cambridge Analytica and the “Deep State” Could...
An important post from long-time SPM member (and former board member) Jane Sarasohn-Kahn (@HealthyThinker), cross-posted from her widely read Health Populi site. (The screen capture above is from this...
View ArticleStudy: Engaging patients in co-design works. Join us at our conference!
A new article in the open access BMC journal Implementation Science reviewed 48 articles about involving patients in projects that redesigned small and large parts of healthcare delivery. Conclusion:...
View ArticleSo, about this “big data” thing …
On Facebook last Friday our member Carla Berg Nelson posted briefly about a new Psychology Today blog post, Data: the New Window into Humanity, by John Nosta. She tagged a number of other members (and...
View ArticleSara Riggare is Swede of the Year in medicine
Sara RIggare, one of the earliest members of our Society, has just received a great honor: Fokus magazine (“Sweden’s Time“) has named her “Swede of the Year” in medicine. In the photo from the award...
View ArticleSPM member Jeanne Pinder on TED home page
The famous TED Talks site TED.com is the holy grail of many evangelists. Aside from the extraordinary visibility it gives your message, and aside from the validation of your message (the site’s tagline...
View ArticleA million views in 44 days! ClearHealthCosts price transparency TED Talk goes...
SPM member Jeanne Pinder has spent years crusading for price transparency with her startup ClearHealthCosts. She’s formed partnerships with WHYY in Philadelphia, been on CBS News, won awards for...
View ArticleMarketing & Communications Rockstars Wanted!
The Society for Participatory Medicine (SPM) is looking for some rock stars to join our Marketing committee and to help change the world. If you would like to volunteer or know someone who may be...
View ArticleWe’re Looking for an Executive Director to Join the Society
Have you heard? The Society for Participatory Medicine (SPM) is hiring an Executive Director. You can read more about the position here and how to apply. Please pass the job description along to your...
View ArticleMoving Forward to Make SPM Stronger
As you know over the past year we at SPM have been involved in rethinking our organization. How can we make it stronger? More sustainable? More impactful? And more meaningful to our members and...
View ArticleAn Introduction to our new Executive Director, Randy Houk
I am so honored and excited to introduce myself to you, SPM Blog readers, SPM members and friends, and to share with you a preview of coming attractions. By that I mean that since I’ve been the new...
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